Luke's Tuberous Sclerosis Page
Submit Your Personal Tuberous Sclerosis Story - It's simple! |
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Share your family story. I know when I learned of my son's diagnosis, I wanted to read other family stories to see how Tuberous Sclerosis might effect my family. I wanted to feel common instead of alone and stranded not knowing who to seek to answer my questions. Sometimes a parent can quietly read someone else's story without intruding upon another and be capable of capturing different perspectives. Creating a homepage was a bit of work for Luke, but it is very simple to add more information. I am so willing to create a page for your family in the Family Story section and type in your experiences. This will also give your extended family and friends an opportunity to receive updates on your status quo. I feel it is so important to share the diversity of afflication and lives that these children and families experience. Submit your family story to Deanna Runyan-Wall via E-mail:deannadawn@lukets.org If possible e-mail or regular mail a photo that can be attached to your family page. If it is regular mailed we will scan it and immediately return the photo. Ideas for submission may include: birth, personality, symtoms of TS, diagnosis of TS, family experiences or feelings, medical experiences, outlook and regular life activities that you encounter. This home page is intended to be a family resource for families affected by Tuberous Sclerosis. It does not intend to constitute medical advise. Viewers are warned not to take any action with regard to medical treatment relying on the information provided on this page without first consulting the patient's physician.
Deanna Runyan-Wall E-mail address: deannadawn@lukets.org Last updated: April 5, 2008 Created: December 5, 1996 |
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A SPECIAL NEEDS MOM BLOG JOYFUL & JUGGLING
WATCH LUKE'S FOOTBALL TOUCHDOWN ON INSIDE EDITION
LUKE'S Tuberous Sclerosis LIFE STORY
A MOTHER'S JOURNAL of Accepting Tuberous Sclerosis
PRACTICAL FAMILY RESOURCES |
