Luke's Tuberous Sclerosis Page
TSC Family Stories |
(Click on the child's name to read their story)Creating a Luke's homepage was a bit of work, but it is very simple to add more information. We are willing to create a page for your family in the Family Story section and type in your experiences. This will also give your extended family and friends an opportunity to receive updates on your status quo. Submit your family story to Deanna Runyan-Wall via E-mail:deannadawn@lukets.org If possible e-mail or regular mail a photo that can be attached to your family page. If it is regular mailed we will scan it and immediately return the photo. Ideas for submission may include: birth, personality, symtoms of TS, diagnosis of TS, family experiences or feelings, medical experiences, outlook and regular life activities that you encounter. This home page is intended to be a family resource for families affected by Tuberous Sclerosis. It does not intend to constitute medical advise. Viewers are warned not to take any action with regard to medical treatment relying on the information provided on this page without first consulting the patient's physician.
Deanna Runyan-Wall E-mail address: deannadawn@lukets.org Last updated: April 5, 2008 Created: December 5, 1996 |
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A SPECIAL NEEDS MOM BLOG JOYFUL & JUGGLING
WATCH LUKE'S FOOTBALL TOUCHDOWN ON INSIDE EDITION
LUKE'S Tuberous Sclerosis LIFE STORY
A MOTHER'S JOURNAL of Accepting Tuberous Sclerosis
PRACTICAL FAMILY RESOURCES |
