Luke's Tuberous Sclerosis Page
Book Review |
AdultGomez (1988) Tuberous Sclerosis Miller, Nancy B.(1994) Nobody's Perfect. Paul H. Brookes Publishing Co. Excellent book about living and growing with Children who have special needs. Powell, T.H. Brothers and Sisters - A Special Part of Exceptional Families (Exceptional Parent Library). Marsh, D.B. (1995) From the Heart: On Being a Mother of a Child with Special Needs. Woodbine House. Simons, Robin. (1987) After the Tears. The Children's Museum of Denver. A wonderful book about being a parent of a special needs child touching on subjects like accepting, guilt, anger, martial, relative, future, etc... Hart, Charles A. (1993) A Parent's Guide to Autism. Pocket Books. Smith, Patricia McGill. (1988) Children with Epilepsy - A Parents Guide. Woodbine House.(br> Meyer, Donald J. (1994) Sibshops, Workshops for Siblings of Children with Special Needs. Paul H. Brookes Publishing. Faber, Adele. (1987) Siblings Without Rivalry. Avon Books, New York. Lansky, Vicki. (1993) Games Babies Play. The Book Peddlers. A resource book on games to play with babies from birth to 12 months. Morris, Lisa Rappaport. (1989) Creative Play Activities for Children with Disabilities. Human Kinetics Books. Schwartz, Sue. (1996) The New Language of Toys. Woodbine House. Makarowski, Lou. (1996) How to Keep Your C.O.O.L. with Your Kids. The Berkley Publishing Group. Gillespie, J.T. & Gilbert, C.B. (1994) Best Books for Children: Preschool through the middles grades. New York: R.R. Bowker. Includes a section on Physical and Mental Disabilities. Buckle, Marian C., & Buckel, Tiffany. (1992) Mom, I have a staring problem: A true story of petit mal seizures and the hidden problem it can cause: Learning Disability. Bradenton, FL: Author. (Available from Marian C. Buckle, P.O. Box 20833, Bradenton, FL 34203-0833.) Exceptional Parent Resource Guide. Directories of National Organizations, Associations, Products and Services. Available through local Bookstores or 800-535-1910. Juvenile Picture BooksMoss, Deborah. (1989) Lee the Rabbit with Epilepsy. Woodbine House, Inc. Katz, I & Ritvo, E. Joey and Sam. A heartwarming storybook about autism, a family and a brother's love. Mayer, Gina & Mercer. A Very Special Critter. A story about a new boy in class that is in a wheelchair and how he makes and appreciates friends. Emmert, M & Owens, G.(ill) I'm the Big Sister Now. How loving care of family and friends can influence the quality of life for special need children. Fassler, J. & Lasker, J.(ill) Howie Helps Himself. Helps special need child identify with some of the joys, stresses and strains of a disabilty. Osofsky, A. My Buddy Buddy is the best dog a boy could have. A story about how people with disabilities want to be independent. Carlson, Nancy L. (1990). Arnia and the new kid. New York: Viking. (About a boy in a wheelchair) Muldoon, K.M. (1989) Princess Pooh. Niles, IL: Albert Whitman & Compnay. (About a young girl and her sister who uses a wheelchair) Osofsky, Audrey. (1992) My Buddy. New York: Henry Holt & Company. (About a boy with muscular dystrophy) Peckinpah, S.L. (1993) Chester ... the imperfect all-star. Woodland Hills, CA: Scholars Press. (About a young boy with a leg anomaly) Wells, Rosemary & Craik, Dinah M. (1990) Little lame Prince. New York: Dial Books for Young Readers. Caseley, Judith. (1991). Harry and Willy and Carrothead. New York: Greenwillow Books. (About prejudice) Schwier, Karin M. (1992) Keith Edward's different day: "Different is just different!" San Luis Obispo, CA: Impact Publishers. (About a five year old boy who meets a woman in a wheelchair and other who are different from himself) Juvenile Easy ReaderBergman, T. (1989) On our own terms: Children Living with physical disablilities. Milwaukee: Gareth Stevens Children's Books. (non-fiction) Wright, Betty. (1989) Rosie and the dance of the dinosaurs. New York: Holiday House. (About a child with nine fingers) Calmenson, Stephanie. (1994). Rosie: A visiting dog's story. New York: Clarion Books. (About a dog who visits people with various disabilities) Holcomb, N. (1990) Sarah's Surprise. Exton, PA: Jason and Nordic Publishers. (About a five year old girl who cannot talk but who uses a picture board and then an augmentative communication device to communicate) Scott, Sharon. (1992) Not better...not worse...just different. Amherst, MA: Human Resource Development Press (A book to teach children ages 5 to 10 to be kind to one another) Juvenile FictionAmerican Brian Tumor Association. (1994). Alex's journey: The story of a child with a brian tumor. Des Plaines, IL: Author. Krisher, Trudy. (1990). Kathy's hats: A story of hope. Morton Grove, IL: Albert Whitman. (About a young girl with cancer) Wilson, Nancy Hope. (1992) Bringing Nettie Back. New York: Maxwell Macmillan International. (About a young child with a serious brain condition) Springer, Nancy. (1991) Colt. New York: Dial Books for Young Readers. (About a child with a crippling disease) YouthGordon, M. (1991) Jumpin' Johnny get back to Work! A child's guide to ADHD/hyperactivity. DeWitt, NY: GSI (Available on videotape as well) (Grades 1-6) Gordon, M. (1992). My Brother's a World Class Pain: A Sibling's Guide to ADHD/hyperactivity. DeWitt, NY:GSI (Grades 1-8) Nadeau, K.G. & Dixon, E.B. (1991) Learning to slow down and pay attention. Annandale, VA: Chesapeake Psychological Publications (Grades 3-6) Shapiro, L.E., & Parrotte, T. (ill.). (1993) Sometimes I drive my mom crazy, but I know she's crazy about me: A self-esteem book for overactive and impulsive children. King of Prussia, PA: Center for Applied Psychology. (Grades K-6, 80 pages) Gehret, Jeanne. (1992) Learning disabilities and the don't give-up kid. Fairport, NY: Verbal Images Press. (Ages 6-10) Young AdultBerger, Larry, Lithwick, Dahlia, & Benson, Robert (ill.) (1992). I will sing life: Voices from the Hole in the Wall Gang camp. Boston: Little, Brown. (non-fiction) Thesman, Jean. (1989) Appointment with a stranger. Boston: Houghton Mifflin. (About a young child with severe asthma) Krementz, Jill (1992). How it feels to live with a physical disability. New York: Simon & Schuster. (non-fiction) Kriegsman, K.H., Zaslow, E.L. & D'Zmura-Rechsteiner, J. (1992) Taking Charge: Teenagers talk about life and physical disabilities. Rockville, MD: Woodbine House. (Grades 7-12) Strachan, Ian. (1990) The flawed glass. Boston: Little, Brown. This home page is intended to be a family resource for families affected by Tuberous Sclerosis. It does not intend to constitute medical advise. Viewers are warned not to take any action with regard to medical treatment relying on the information provided on this page without first consulting the patient's physician.
Deanna Runyan-Wall E-mail address: deannadawn@lukets.org Last updated: April 5, 2008 Created: December 5, 1996 |
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LUKE'S Tuberous Sclerosis LIFE STORY
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